Board of Directors
 

President and Executive Director
Christy Greeley, Illinois
cgreeley@cystinosis.org

Vice President Research
Elva Smith, Georgia
esmith@cystinosis.org

Vice President Development
Jen Wyman, Michigan
jwyman@cystinosis.org

Vice President Education and Awareness
Paula Shal, Wisconsin
pshal@cystinosis.org

Vice President Family Support
Cheri Friend, Georgia
cfriend@cystinosis.org

Secretary
Karen Gledhill, New York
kgledhill@cystinosis.org

Treasurer
Brittney LeBeau, Illinois
blebeau@cystinosis.org

Directors
Dan Julian, Illinois (Education Committee)
Marybeth Krummenacker, New York (EducationCommittee)
John Maccarone, New York
Kathy Mandrell, Illinois
Mack Maxwell, Texas (Education Committee)
Frankie McGinnis, South Carolina (Development Committee)
Jose Morales, Connecticut (Development and Finance Committees)
Jill Morrill, Michigan
John Shepperd, Texas (Development Committee)
Lorna Smith, Georgia
Tahnie Woodward, Utah

Committee Members (non board members)
Colleen Hammond, Massachusetts (Finance Committee)
Richard Jordan, California (Education Committee)
Susie McCalla, Texas (Education Committee)
Gail Potts, Texas (Education Committee)

Scientific Review Board

Chairperson
William A. Gahl, M.D., Ph.D.
Clinical Director, National Human Genome Research Institute, Head, Section on Human Biochemical Genetics, Medical Genetics Branch, Head, Intramural Program, Office of Rare Diseases, National Institutes of Health, Bethesda, Maryland

Scientific Review Board Membership

Adam J. Jonas, M.D.
Chairman, Department of Pediatrics, H arbor-UCLA Medical Center , California

Frederick Kaskel, M.D., Ph.D.
Professor of Pediatrics, Director, Division & Training Program in Pediatric Nephrology Children's Hospital at Montefiore, Albert Einstein College of Medicine of Yeshiva University , New York

Craig B. Langman, M.D.
Issac A. Abt, M.D. Professor of Kidney Diseases, Feinberg School of Medicine, Northwestern University, Head, Kidney Diseases, Children's Memorial Hospital, Chicago, Illinois

William Rizzo, M.D.
Professor of Pediatrics , Chief, Inherited Metabolic Diseases , University of Nebraska Medical Center , Nebraska

Jerry A. Schneider, M.D.
Research Professor of Pediatrics, Dean of Academic Affairs Emeritus , UCSD School of Medicine , San Diego , California

Joseph D. Schulman, M.D.
Palm Springs, California

Jess G. Thoene, M.D.
Director, Biochemical Genetics Laboratory, Active Professor Emeritus of Pediatrics, University of Michigan

Medical Advisory Committee

Corinne Antignac, M.D., Ph.D.
INSERM U574 and Department of Genetics, Paris Descartes Universite, Tour Lavoisier 6 estage,
Necker Hospital, Paris, France

Donald Cairns, Ph.D.
Associate Head of School, School of Pharmacy, The Robert Gordon University, Schoolhill,
Aberdeen, Scotland

Ranjan Dohil, M.D.
Associate Professor, Department of Pediatrics, UCSD School of Medicine,
San Diego, California

Ewa Elenberg, M.D.
Pediatric Nephrologist, Texas Children's Hospital,                                                                                                                                                                                                                Baylor College of Medicine, Texas

Julie R. Ingelfinger, M.D.
Senior Consultant in Pediatric Nephrology, Mass General Hospital for Children,                                                                                                                                                              Professor of Pediatrics, Harvard Medical School,                                                                                                                                                                                                                 Deputy Editor, The New England Journal of Medicine,                                                                                                                                                                                                         Boston, Massachusetts

Robert Kleta, MD, PhD
Potter Chair of Nephrology, University College London / UK

Roslyn B. Mannon, M.D. 
Professor of Medicine, Division of Professor of Surgery,
Division of Director of Research,
Alabama Transplant Center Birmingham, AL

 

Minnie Sarwal, M.D.
Nephrologist and Director, Pediatric Renal Transplantation,                                                                                                                                                                                                           Stanford University, California

Susan Thomas Schendel, M.D.
Clinical Assistant Professor, Medical Director, Pediatric Kidney Transplant Program,
Division of Pediatric Nephrology & Transplantation, C.S. Mott Children's Hospital,
University of Michigan Medical Center

Doris A. Trauner, M.D.
Professor, Department of Neurosciences,                                                                                                                                                                                                                                UCSD School of Medicine,                                                                                                                                                                                                                                                          San Diego, California

Professional Advisory Committee

Maya Doyle, LCSW-R
Senior Social Worker, Pediatric Nephrology, The Children’s Hospital at Montefiore,
Bronx, New York

David Glaize, Ed.D.
Student Services Director, Seminole Community College,
Lake Mary, Florida

Nick Smith, LCMHC
New Hope Counseling,
Florida

Charles E. Morrill, M.D. (retired)
Ada, Michigan