

President and Executive Director
Christy Greeley, Illinois
cgreeley@cystinosis.org
Vice President Research
Elva Smith, Georgia
esmith@cystinosis.org
Vice President Development
Jen Wyman, Michigan
jwyman@cystinosis.org
Vice President Education and Awareness
Paula Shal, Wisconsin
pshal@cystinosis.org
Vice President Family Support
Pam Woodward, Utah
pwoodward@cystinosis.org
Secretary
Karen Gledhill, New York
kgledhill@cystinosis.org
Treasurer
Jeff Larimore, South Carolina
jlarimore@cystinosis.org
Directors
Colleen Hammond, Massachusetts (Education and Family Support Committees)
Jessica Jondle, California (Education and Family Support Committees)
Rich Jordan, California
Dan Julian, Illinois (Education Committee)
Marybeth Krummenacker, New York (EducationCommittee)
Brittney LeBeau, Illinois (Finance Committee)
John Maccarone, New York (Development Committee)
Kathy Mandrell, Illinois (Research Committee)
Mack Maxwell, Texas (Education Committee)
Frankie McGinnis, South Carolina (Development Committee)
Jose Morales, Connecticut (Development and Finance Committees)
Jenni Sexstone, Ohio (Finance Committee)
John Shepperd, Texas (Development Committee)
Pam Woodward, Utah (Family Support Committee)
Tahnie Woodward, Utah (Family Support Committee)
Rachel DeLomba, Illinois
Lynn Thomas, New York
Terri Schleuder, Michigan
Committee Members (non board members)
Susie McCalla, Texas (Education Committee)
Gail Potts, Texas (Education Committee)
Chairperson
William A. Gahl, M.D., Ph.D.
Clinical Director, National Human Genome Research Institute, Head, Section on Human Biochemical Genetics, Medical Genetics Branch, Head, Intramural Program, Office of Rare Diseases, National Institutes of Health, Bethesda, Maryland
Adam J. Jonas, M.D.
Chairman, Department of Pediatrics, H arbor-UCLA Medical Center , California
Frederick Kaskel, M.D., Ph.D.
Professor of Pediatrics, Director, Division & Training Program in Pediatric Nephrology Children's Hospital at Montefiore, Albert Einstein College of Medicine of Yeshiva University , New York
Craig B. Langman, M.D.
Issac A. Abt, M.D. Professor of Kidney Diseases, Feinberg School of Medicine, Northwestern University, Head, Kidney Diseases, Children's Memorial Hospital, Chicago, Illinois
Joseph D. Schulman, M.D.
Palm Springs, California
Jess G. Thoene, M.D.
Director, Biochemical Genetics Laboratory, Active Professor Emeritus of Pediatrics, University of Michigan
Robert Kleta, MD, PhD, FASN, FACMG
Professor of Nephrology and Physiology
Potter School of Nephrology
University College London
Royal Free Hospital
London, England
Ann Arbor, MI
Roslyn B. Mannon, MD
Professor of Medicine, Division of Nephrology
Professor of Surgery, Division of Transplantation
Director of Research, Alabama Transplant Center
Birmingham, Alabama
Corinne Antignac, M.D., Ph.D.
INSERM U574 and Department of Genetics, Paris Descartes Universite, Tour Lavoisier 6 estage,
Necker Hospital, Paris, France
Donald Cairns, Ph.D.
Associate Head of School, School of Pharmacy, The Robert Gordon University, Schoolhill,
Aberdeen, Scotland
Ranjan Dohil, M.D.
Associate Professor, Department of Pediatrics, UCSD School of Medicine,
San Diego, California
Ewa Elenberg, M.D.
Pediatric Nephrologist, Texas Children's Hospital
Baylor College of Medicine, Texas
Julie R. Ingelfinger, M.D.
Senior Consultant in Pediatric Nephrology, Mass General Hospital for Children
Professor of Pediatrics, Harvard Medical School Deputy Editor
The New England Journal of Medicine
Boston, Massachusetts
Minnie Sarwal, M.D.
Nephrologist and Director, Pediatric Renal Transplantation
Stanford University, California
Susan E. Thomas M.D.
Pediatric Nephrologist
Ann Arbor, MI
Doris A. Trauner, M.D.
Professor, Department of Neurosciences
UCSD School of Medicine
San Diego, California
Paul Goodyer, MD
Montreal Children's Hospital
2300 Tupper Street
Montreal, Quebec, Canada
Laurence GreenBaum, MD, PhD
Marcus Professor of Pediatric Nephrology
Emory University and Children's Healthcare of Atlanta
Atlanta, Georgia
Richard H. Simon, MD
Professor and Associate Chair for Faculty Affairs
Department of Internal Medicine
Pulmonary and Critical Care Medicine Division
University of Michigan Medical School
Ann Arbor, Michigan
Maya Doyle, LCSW-R
Senior Social Worker, Pediatric Nephrology, The Children’s Hospital at Montefiore,
Bronx, New York
David Glaize, Ed.D.
Student Services Director, Seminole Community College,
Lake Mary, Florida
Nick Smith, LCMHC
New Hope Counseling,
Florida
Charles E. Morrill, M.D. (retired)
Ada, Michigan