Cystinosis Research Network
302 Whytegate Court
Lake Forest, IL 60045 USA
Toll Free: 1-866-276-3669 Tel: (847) 735-0471
Fax: (847) 235-2773 E-Mail: CRN@cystinosis.org

CRN Federal Tax ID #: 04-3323789

  About CRN
 
 

Home
About CRN
About Cystinosis
Community News
Conferences
Fundraisers
Newsletters
Research
Resources
Support
Donate

Privacy Policy



Search the Internet using GoodSearch.com and raise money for the Cystinosis Research Network! Click here for more information, or just click the graphic above to get started.

Join the Cystinosis Research Network Online Support Group

 

 

 

 

 

VISION. The Cystinosis Research Network’s (CRN) vision is the discovery of improved treatments and ultimately a cure for cystinosis.

MISSION. The Cystinosis Research Network is a volunteer, non-profit organization dedicated to supporting and advocating research, providing family assistance and educating the public and medical communities about cystinosis.

2007 CRN Annual Report

CRN Bylaws

Form 990 2006


Board of Directors

President and Executive Director
Christy Greeley, Illinois

Vice President Research
Elva Smith, Georgia

Vice President Development
Jill Morrill, Michigan

Vice President Education and Awareness
Paula Shal, Wisconsin

Vice President Family Support
Pam Woodward, Utah

Secretary
Karen Gledhill, New York 

Treasurer
Brittney LeBeau, Illinois

Directors
Sandy Glaize, Florida (Education Committee)
Dave Greeley, Illinois (Development and Nominating Committees)
Kathleen Harrison, Arizona (Family Support and Membership Committee)
Carol Hughes, Florida (Family Support Committee)
Dan Julian, Illinois (Education Committee)
Marybeth Krummenacker (Education Committee)
Mack Maxwell, Texas (Education Committee)
Frankie McGinnis, South Carolina (Development Committee)
Jose Morales, Connecticut (Development and Finance Committees)
John Shepperd, Texas (Development Committee)
Lynn Thomas, New York (Family Support Committee)

Committee Members (non board members)
Cheri Friend, Georgie (Conference, 2009 Committee)
Colleen Hammond, Massachusetts (Finance Committee)
Richard Jordan, California (Education Committee)
Susie McCalla, Texas (Education Committee)
Gail Potts, Texas (Education Committee)
Lorna Smith, Georgia (Conference, 2009 Committee)
Jen Wyman, Michigan (Development and Finance Committees)

Scientific Review Board

Chairperson
William A. Gahl, M.D., Ph.D.
Clinical Director, National Human Genome Research Institute, Head, Section on Human Biochemical Genetics, Medical Genetics Branch, Head, Intramural Program, Office of Rare Diseases, National Institutes of Health, Bethesda, Maryland

Scientific Review Board Membership

Adam J. Jonas, M.D.
Chairman, Department of Pediatrics, H arbor-UCLA Medical Center , California

Frederick Kaskel, M.D., Ph.D.
Professor of Pediatrics, Director, Division & Training Program in Pediatric Nephrology Children's Hospital at Montefiore, Albert Einstein College of Medicine of Yeshiva University , New York

Craig B. Langman, M.D.
Issac A. Abt, M.D. Professor of Kidney Diseases, Feinberg School of Medicine, Northwestern University, Head, Kidney Diseases, Children's Memorial Hospital, Chicago, Illinois

William Rizzo, M.D.
Professor of Pediatrics , Chief, Inherited Metabolic Diseases , University of Nebraska Medical Center , Nebraska

Jerry A. Schneider, M.D.
Research Professor of Pediatrics, Dean of Academic Affairs Emeritus , UCSD School of Medicine , San Diego , California

Joseph D. Schulman, M.D.
Palm Springs, California

Jess G. Thoene, M.D.
Director, Biochemical Genetics Laboratory,  Active Professor Emeritus of Pediatrics,  University of Michigan

Medical Advisory Committee

Donald Cairns, Ph.D.
Associate Head of School, School of Pharmacy, The Robert Gordon University, Schoolhill, Aberdeen, Scotland

Ranjan Dohil, M.D.
Associate Professor, Department of Pediatrics, UCSD School of Medicine , San Diego , California

Ewa Elenberg, M.D.
Pediatric Nephrologist, Texas Children's Hospital, Baylor College of Medicine, Texas

Julie R. Ingelfinger, M.D.
Senior Consultant in Pediatric Nephrology, Mass General Hospital for Children, Professor of Pediatrics, Harvard Medical School, Deputy Editor, The New England Journal of Medicine , Boston, Massachusetts

Robert Kleta, MD, PhD
Potter Chair of Nephrology, University College London / UK

Minnie Sarwal, M.D.
Nephrologist and Director, Pediatric Renal Transplantation, Stanford University , California

Susan Thomas Schendel, M.D.
Clinical Assistant Professor, Medical Director, Pediatric Kidney Transplant Program, Division of Pediatric Nephrology & Transplantation, C.S. Mott Children's Hospital, University of Michigan Medical Center

Doris A. Trauner, M.D.
Professor, Department of Neurosciences, UCSD School of Medicine, San Diego, California

Professional Advisory Committee

Maya Doyle, LCSW-R
Senior Social Worker, Pediatric Nephrology, The Children’s Hospital at Montefiore , Bronx, New York

David Glaize, Ed.D.
Student Services Director, Seminole Community College, Lake Mary, Florida

Nick Smith, LCMHC 
New Hope Counseling, Florida

Charles E. Morrill, M.D. (retired)
Ada , Michigan

back to top

 


©2007 Cytinosis Research Network. All Rights Reserved