The Cystinosis Research Network’s vision is the discovery of improved treatments and ultimately a cure for cystinosis. The Cystinosis Research Network (CRN) is a volunteer, non-profit organization dedicated to advocating and providing financial support for research, providing family assistance and educating the public and medical communities about cystinosis.

We are a private, nonprofit 501(c)(3) corporation, Federal Tax ID 04-3323789.

Cystinosis Research Network
302 Whytegate Court
Lake Forest, IL 60045 USA

Phone: 847-735-0471
Toll Free: 866-276-3669
Fax: 847-235-2773

Email: info@cystinosis.org