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Doctor Recommendations.
The following doctors have been recommended by members of the CRN.
National Institutes of Health (NIH)
William A. Gahl, M.D., Ph.D.
Clinical Director, National Human Genome Research Institute
Head, Section on Human Biochemical Genetics
Medical Genetics Branch, Head, Intramural Program
Office of Rare Diseases, National Institutes of Health
Bethesda, Maryland
Dr. Gahl's Contact Person:
Joan "Ziggy" Balog
(301) 496-5422
jbalog@nhgri.nih.gov
Arizona
Mark W. Joseph, MD
Department of Nephrology
Phoenix Children's Hospital
1919 E. Thomas Rd.
Phoenix, AZ 85016
(602) 546-0965
California
Minnie Sarwal, M.D., Ph.D.
Associate Professor of Pediatrics
Stanford University
G320m
300 Pasteur Drive
Stanford, CA 94304
Tel: (650) 723-7903
Fax: (650) 497-8718
msarwal@stanford.edu
Jerry A. Schneider, M.D.
Research Professor of Pediatrics
Dean for Academic Affairs Emeritus
UCSD School of Medicine
9500 Gilman Drive 0602
La Jolla, CA 92093-0602
(858) 822-1400
jschneider@ucsd.edu
Ranjan Dohil, M.D.
Associate Professor, Department of Pediatrics
UCSD School of Medicine
200 W. Arbor Drive #8450
La Jolla, CA 92093
Doris A. Trauner, M.D.
Professor, Department of Neurosciences
UCSD School of Medicine
9500 Gilman Drive
La Jolla, CA 92093-0935
Tel: (858) 822-6700
Fax: (858) 822-6707
dtrauner@ucsd.edu
Adam J. Jonas, M.D.
Chairman, Department of Pediatrics
Harbor-UCLA Medical Center
Professor of Pediatrics
Geffen School of Medicine at UCLA
Harbor-UCLA Medical Center
1000 W. Carson Street, Box 17
Torrance, CA 90509-2910
Tel: (310) 222-2301
ajjonas@aol.com
Florida
Dr. Sharon Perlman (Pediatric Nephrologist)
Pediatric Nephrology Group of USF
All Children's Hospital
Tampa, Florida
(800) 456-4543
Dr. Panzarino (Pediatric Nephrologist)
Pediatric Nephrology Group of USF
Tampa General Hospital
Tampa, Florida
(813) 259-8763
Illinois
Craig B. Langman, M.D.
The Isaac A. Abt, MD Professor of Kidney Diseases
Feinberg School of Medicine, Northwestern University
Head, Kidney Diseases
2300 Childrens Plaza, #37
Children's Memorial Hospital
Chicago IL 60614
www.medschool.northwestern.edu/lab/pediatric_kidney_disease
www.medschool.northwestern.edu/bone
www.iccbh4.org
Exec Secretary: Debbie Muse [dmuse@childrensmemorial.org]
Phone: (773) 327-5071
Fax: (773) 327-5072
Dialysis: (773) 549-2010
Dr. Rekha Agrawal
Director of Pediatric Nephrology at Loyola University Chicago
Oak Brook, IL.
Appointments: (708) 216-8563
Office: (708) 327-9149
Paul Wong, M.D., M.Sc. (Geneticist)
Rush University Medical Center
1750 W. Harrison Street
Room 1507 Jelke
Chicago, IL 60612-3824
(312) 942-6298
Richard Sandler, M.D. (Gastroenterologist)
Rush Children's Hospital
1725 West Harrison Street
Suite 946
Chicago, IL 60612-3824
(312) 942-2889
Farahnak Assadi, M.D. (Nephrologist)
Rush Children's Hospital
1725 West Harrison Street
Suite 718
Chicago, IL 60612-3824
(312) 942-4035
Nancy Hamming, M.D. (Opthalmologist)
Eye Center Physicians, Ltd.
1725 West Harrison Street
Suite 906
Chicago, IL 60612-3824
John Sarwark, M.D. (Orthopedist)
Children's Memorial Hospital
2300 Children's Plaza, Box 69
Chicago, IL 60614-3394
(773) 327-1270
Indiana
Dr. Jeff Leiser
James Whitcomb Riley Hospital for Children
Indiana University Medical Center
699 West Drive, RR 213
Indianapolis, Indiana 46202
(317) 274-2563
Maryland
Dr. Alicia Neu (Pediatric Nephrologist)
Johns Hopkins Hospital
Baltimore, Maryland
(410) 955-4427
Massachusetts
Julie R. Ingelfinger, M.D.
Professor of Pediatrics, Harvard Medical School
Senior Consultant in Pediatric Nephrology
Massachusetts General Hospital for Children at MGH
Yawkey 6C
55 Fruit Street
Boston, MA 02114
(617) 726-2908
jingelfinger@partners.org
Michigan
Jess G. Thoene, M.D.
Director, Biochemical Genetics Laboratory
Active Professor Emeritus of Pediatrics
D5240 MPB-Box 0718
1500 E. Medical Center Drive
University of Michigan
Ann Arbor, MI 48109-0718
(734) 272-5573
jthoene@umich.edu
Susan Thomas Schendel, MD
Clinical Associate Professor
Division of Pediatric Nephrology & Transplantation
C.S. Mott Children's Hospital
University of Michigan Medical Center
F6865/Box 0297
1505 Simpson Road
Ann Arbor, MI 48108-0297
Tel: (734) 936-4210
Fax: (734) 763-6997
sethomas@umich.edu
Dr. David Kershaw (Pediatric Nephrologist)
Pediatric Nephrology Office
1500 Medical Center Drive
Ann Arbor, MI
(734) 936-4210
Dr. Timothy Bunchman (Pediatric Nephrologist)
DeVos ChildrensHospital
Grand Rapids, Michigan
(616) 391-3788
Missouri
Ellen Wood (Pediatric Nephrologist)
Cardinal Glennon Children's Medical Center
1465 S. Grand Blvd
St. Louis, MO 63104
(314) 577-5662
Nebraska
William Rizzo, M.D.
Professor of Pediatrics
Chief, Inherited Metabolic Diseases
University of Nebraska Medical Center
985456 Nebraska Medical Center
Omaha, NE 68198-5456
(402) 559-2560
wrizzo@unmc.edu
New Jersey
Howard E. Corey M.D.(Pediatric Nephrologist)
100 Madison Avenue
Morristown, NJ 07960
(973) 971-5649
New York
Dr. Frederick Kaskel (Pediatric Nephrologist)
CRN Medical Advisory Board
Vice Chairman, Affiliate and Network Relations
Chief, Division of Pediatric Nephrology
Professor of Pediatrics at Children's Hospital at Montefiore
Ira Greifer Children's Kidney Center
3415 Bainbridge Avenue
Bronx, New York 10467
(718) 741-2450
Richard W. Erbe, M.D., FACMG (Geneticist)
Professor of Pediatrics & Medicine, University at Buffalo
Chief, Division of Genetics
The Women and Children's Hospital of Buffalo
140 Hodge Avenue, Room 166
Buffalo, NY 14222-2034
(716) 878-7411
rerbe@upa.chob.edu folate@aol.com
Wayne Waz, M.D. or James Springate M.D.
Division of Nephrology
Women's and Children's Hospital of Buffalo
219 Bryand Street
Buffalo, NY 14222
(716) 878 7275
Dr. William Varade (Pediatric Nephrologist)
University of Rochester Medical Center
Rochester, NY
Pennsylvannia
Dr. Glenn Bock and Barbara Leuber (Pediatric Nephrologists)
Geisinger Medical Center
Janet Weis Children's Hospital
100 North Academy Avenue
Danville, PA 17822
(800) 271-8055
Dr. Kaplan
Childrens Hospital of Philadelphia
Philadelphia, PA
(215) 590-2449
Texas
Ewa Elenberg, M.D.
Assistant Professor, Renal Section
Department of Pediatrics
Baylor College of Medicine
Texas Children’s Hospital
6621 Fannin Street MC 3-2482
Houston, TX 77030
Tel: (832) 824-3800
Fax: (832) 825-3889
elenberg@bcm.tmc.edu
Dr. Pena (Pediatric Nephrologist)
Ft. Worth Children's Hospital
Ft. Worth, TX
Dr. Mouin G. Seikaly
Children's Medical Center of Dallas
Dallas, TX
(214) 456-2980
Dr. Stuart Goldstein
Texas Children's Hospital
Houston, TX
Renal Center (832) 824-3800
Dr Goldstein’s Nurse: amkruege@texaschildrenshospital.org
Utah
Dr Sherbotie
University of Utah Hospital
Salt Lake City ,UT
Vermont
Dr. Ann Guillot
Fletcher Allen Hospital
Children's Specialty Center
Burlington, VT
Washington
Dr. Cyrus Cryst (Adult Nephrologist)
Virginia Mason Medical Center
Seattle, Washington
(206) 223-6673
Dr. Steven Kirtland (Pulmonary--Critical Care-Sleep Medicine)
Virginia Mason Medical Center
Seattle, Washington
(206) 223-6634
Canada
Dr. Arora
McMaster Children's Hospital
Hamilton Health Sciences
3F Clinic Team 1
1200 Main Street West
Hamilton, ON, Canada L8N 3Z5
(905) 521-2100 ext. 75011
United Kingdom
Robert Kleta, MD, PhD, FASN, FACMG
Professor of Nephrology and Physiology
Potter Chair of Nephrology
University College London
Royal Free Hospital
Rowland Hill Street
Hampstead, London NW3 2PF
UK
Tel: 44-20-7317 7554
Fax: 44-20-7472 6476
r.kleta@ucl.ac.uk
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