Cystinosis Research Network
302 Whytegate Court
Lake Forest, IL 60045 USA
Toll Free: 1-866-276-3669 Tel: (847) 735-0471
Fax: (847) 235-2773 E-Mail: CRN@cystinosis.org

CRN Federal Tax ID #: 04-3323789

 
 
 

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VISION The Cystinosis Research Network’s (CRN) vision is the discovery of improved treatments and ultimately a cure for cystinosis.

MISSION The Cystinosis Research Network is a volunteer, non-profit organization dedicated to supporting and advocating research, providing family assistance and educating the public and medical communities about cystinosis.


What's New

Shepherd Family and Southwest Foundation for Biomedical Research Featured in Express News (6/14/08)

Support Keeps Tullamarine Olympic Hopes Alive for Judo Family (6/7/08)

CRN Spring/Summer 2008 Newsletter (5/27/08)

CRN Spokesperson and Miss United States Ashley Kazian's Appearance Schedule (4/6/08)

Laura McGinnis Featured in GoUpstate (4/4/08)

2008 CRN Call for Proposals (3/30/08)

2008 CRN Grant Guidelines (3/21/08)

Whitesboro Boy's Basketball Program Hosts "Shoot for the Cure" in Honor of Mason Reed (3/9/08)

Development, and in vivo testing, of novel therapies for cystinosis--Final Progress Report--Antignac & Kalitzis (3/8/08)

A Potential new pro-drug for the treatment of cystinosis: Design, synthesis, and in-vitro evaluation--McCaughan, et. al. (3/7/08)

Cystine Accumulation in the CNS results in severe age-related memory deficits--Maurice, et.al. (3/6/08)

CRN 2007 Annual Report (3/5/08)

Doctor Recommendations from CRN members (3/3/08)

Participants Sought for Study to Better Learn How to Prepare Blood Samples for Determining Cystine Levels (1/20/08)

2009 CRN Family Conference Set to be Held in Atlanta July 16-18 (1/11/08)

Progress Magazine, the Magazine of the Southwest Foundation for Biomedical Research, Features the Shepperd Family(1/8/08)

CRN Fall/Winter 2007 Newsletter(12/8/07)

Twins with cystinosis Receive Record-Breaking Kidney Transplants (12/7/07)

Towsley Foundation Awards Matching Grant to CRN (11/2/07)

Dr. Thoene Seeks Participants for Cystinosis Tissue Registry (10/31/07)

Wade Hampton Week begins! McGinnis Family featured in newspaper! (10/17/07)

Ashley Kazian crowned Miss United States--Cystinosis is her platform!(10/12/07)

Participate in UCSD's Cystinosis Project in Cognitive and Neural Development (09/29/07)

Current CRN Research Funding (09/26/07)

Nephropathic Cystinosis in Adults: Natural History and Effects of Oral Cysteamine Therapy--William A. Gahl, MD, PhD; Joan Z. Balog, RN, MSN; and Robert Kleta, MD, PhD (09/25/07)

The Ocular Anomalies in a Cystinosis Animal Model Mimic Disease Pathogenisis--Dr. Kalatzis, et.al. (09/24/07)













5K Fun Run/Walk Raises 30K in honor of Kacy Wyman!

Click here to read
more about it!

Miss United States and CRN spokesperson, Ashley Kazian, made an appearance at the 5K Fun Run/Walk in honor of Kacy Wyman. Kacy tried on Ashley's crown for size. (photo by Pam Schofield)


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