Cystinosis Research Network
302 Whytegate Court
Lake Forest, IL 60045 USA
Toll Free: 1-866-276-3669 Tel: (847) 735-0471
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UCSD School of Medicine
Department of Neurosciences
Pediatric Neurology Research Group

Dr. Doris Trauner and her colleagues are beginning a study of brain development and cognitive and learning abilities in children with cystinosis. We are particularly interested in testing children between the ages of 3-6 years, and between the ages of 10-18 years. For the older children and teenagers, we are particularly looking for individuals who have had a previous MRI scan. We will pay for your transportation and hotel costs to come to San Diego for these studies, and will pay your child for his/her participation. If you are interested and would like further information, please call Dr. Amy Schatz or Lynn Babchuck at 858-587-4020, or email Dr. Trauner at dtrauner@ucsd.edu. They will explain the study in more detail, and make arrangements if you do wish to come to San Diego.

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