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The Cystinosis Research Network Medical and Family Conference was held at the Snowbird Ski and Summer Resort in Salt Lake City, Utah July 28 – July 30. Members of the Cystinosis community came from all over the world for three days of presentations, workshops, and family networking. Clinicians and researchers presented leading edge information, answered questions and shared their insights. The theme was “Ain’t No Mountain High Enough,” and highlights of the conference included:
- T-shirts and goodie bags at registration
- Informative presentations from medical professionals and clinicians
- Opportunities for networking with others in the cystinosis community, including families, medical professionals, and clinicians
- Interactive Q&A session with esteemed medical panel that included over 14 medical professionals with expertise in areas of cystinosis research
- Break-out sessions designed to target specific issues within different age groups
- Daycare throughout the conference, which included craft activities, face painting, a visit from a clown, and more
- Daily continental breakfast and two additional meals provided
- Beautiful setting in the mountains with plenty of family activities, such as swimming, hiking, bungee jumping, alpine slide, zip rider, and tram to the top of the mountain!
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