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The Cystinosis Research Network has been the beneficiary of 3 extraordinary events in 2009. We began the year with the 4th Miracles at Milleridge Dinner Dance. Once again, there were over 300 people in attendance for this wonderful evening and a special toast was made to Laura Krummenacker who was celebrating two special anniversaries……20 years since diagnosis and 10 years post kidney transplant! The evening progressed with music, dinner, dancing, raffles and more and all in attendance would agree that a fabulous time was had by all! The families in attendance were, Krummenacker, Finn, Woodward, Hammond, Morales and Greeley Families and all would agree at what an amazing experience it was. The true beneficiary of this amazing event was CRN --- as over $29,000 was raised that evening. As we go to press with this newsletter there has been a tentative date of March 13, 2010 slated for this next incredible evening! |
