

| Feb 2011 | The Living with Cystinosis Survey Results | |
| Oct 2010 | Cystinosis Patients Survey Results: Survey Sheds Light on the Needs of Cystinosis Patients |
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| Sept 2010 | Professional Paper and Final Report: The incidence of atubular glomeruli in nephropathic cystinosis renal biopsies Christopher Larsen, Patrick Walker, and Jess Thoene |
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| Aug 2010 | 15th Congress of the International Pediatric Nephrology Association The Cystinosis Research Network Symposium The Cystinosis Research Network Symposium - Official Program |
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| July 2010 | 2nd Progress Report: Functional Characterization of Cystinosin- LK Francesco Emma, M.D. and Anna Taranta, Ph.D. |
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| Nov 2009 |
Final Report "Gene Transfer Studies for Cystinosis" |
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| Aug 2009 |
6-month Progress Report: Functional Characterization of Cystinosin- LK |
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| June 2009 |
CRN 18-mo progress update -- Gene transfer studies for Cystinosis |
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| Feb 2009 |
Final Report: Study of ATP metabolism in human cystinotic proximal tubular cells and in humans with cystinosis in vivo |
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| Feb 2009 |
Final Report: Evaluation of Novel Prodrugs for the Treatment of Nephropathic Cystinosis |
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| Dec 2008 |
Final Report: Design and Synthesis of Novel Prodrugs for the Treatment of Cystinosis |
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| Dec 2008 |
Final Report: Early Intervention Trial for Visual Processing Deficit in Cystinosis |
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| Nov 2008 | CRN 12 Month Progress Update - Gene Transfer Studies for Cystinosis Viki Kalatzis, PhD, and Eric J. Kremer, PhD |
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| Aug 2008 | Publication: Gene Transfer May be Preventative But Not Curative for a Lysosomal Transport Disorder The American Society of Gene Therapy | Partially funded by CRN |
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| Aug 2008 | 1 year progress report: Development of a Cysteamine in Situ Gelling System for the Treatment of Corneal Crystals in Cystinosis Bolanle Lawal |
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| Aug 2008 | Final Report: Evaluation of Novel Prodrugs for the Treatment of Nephropathic Cystinosis Dr Rachel Knott, Dr Graeme Kay and Professor Donald Cairn |
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| Aug 2008 | 6 month Progress update: Study of ATP Metabolism in Human Cystinotic Proximal Tubular Cells and in Humans with Cystinosis in Vivo Report: E. Levtchenko, MD, PhD |
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| March 2008 | Publication: A Potential New Pro-Drug for the Treatment of Cystinosis: Design, Synthesis and in-Vitro evaluation Bridgeen McCaughan, et. al. |
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| March 2008 | Publication: Cystine Accumulation in the CNS Results in Severe Age-Related Memory Deficits Maurice, et. al. |
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| June 2007 | Progress update: Design and Synthesis of Novel Prodrugs for the Treatment of Cystinosis Professor Donald Cairns |
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| Sept 2006 | Progress update: Development and in Vivo Testing of Novel Therapies for Cystinosis Dr. Corinne Antignac and Dr. Vasiliki Kalatzis |
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| Aug 2006 |
Publication: Increased Apoptosis in Cystinotic Fibroblasts and Renal Proximal Tubule |
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| April 2005 | Cystinosis Research Progress Report Dr. Jess G. Thoene | Partially funded by CRN |
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