Support Resources

Alliance of Genetic Support Groups
medhlp.netusa.net

Children's Organ Transplant Association
www.cota.org

Contact a Family (UK)
www.cafamily.org.uk

Genetic Alliance
geneticalliance.org

Kakkis EveryLife Foundation
www.kakkis.org 

National Organization of Rare Diseases
www.rarediseases.org

NIH Office of Rare Diseases
rarediseases.info.nih.gov

Re-evaluation Counseling - Also known as Co-counseling
www.rc.org

University of Kansas Medical Center
www.kumc.edu

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