Receiving a cystinosis diagnosis can be overwhelming.
We are here to help.
For some, that means hearing from others with first-hand experience like our caregivers and individuals living with cystinosis. For others, it’s getting paired with a cystinosis expert who can provide state-of-the-art treatment information. Or maybe you’ve come in search of informational resources. Either way, welcome to our small but mighty community.
- Managing Cystinosis
- Support Groups
- Families in Your Area
- Doctors in Your Area
- Standards of Care
- Parent Guide
Meet Chelsea Meschke, a cystinosis caregiver and CRNs Vice President of CRN Family Support. Email to connect with her today.