Contact Us

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We are here to provide support and assistance to families and individuals with cystinosis and educate communities about our disease.

There are a number of ways to get in contact depending on your needs and comfort level: complete the form below, call, email, or write us a letter. Thank you for your interest and we will be in touch shortly.

Cystinosis Research Network
302 Whytegate Court
Lake Forest, IL 60045 USA
Phone: 847-735-0471
Toll-Free: 866-276-3669
Fax: 847-235-2773
Email: info@cystinosis.org

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