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May 2020

57 Miles for Cystinosis

May 2 @ 12:00 pm
Sussex Central High School, 26026 Patriots Way
Georgetown, DE 19947 United States
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Cystinosis Awareness Day – 3rd Annual

May 7

Check back soon for more information.

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Miles for Moose

May 9 @ 8:00 am - 8:00 pm
Thompson Park Pavilion (Family Gathering Site), 1 Thompson Park
Watertown, NY 13601 United States
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Support the first annual Miles for Moose fundraiser.

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July 2020

Cystinosis Network Europe 2020 International Conference

July 11

The International Cystinosis Conference hosted by Cystinosis Ireland on behalf of CNE will now take place virtually on 11th July. Following much consideration, Cystinosis Network Europe (CNE) and Cystinosis Ireland have decided to cancel the in-person International Cystinosis Conference planned for Dublin in July 2020 due the ongoing situation with COVID-19. About CNE Cystinosis Network Europe (CNE) which comprises members from patient organizations across Europe and further afield. Eight European organisations come together to support people with cystinosis and promote…

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