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November 2019

Community Advisory Board (CAB) Meeting

November 1 - November 3

The Community Advisory Board (CAB) was created to establish a worldwide cystinosis committee under the mentorship of Eurordis, the representative body for rare diseases in Europe. The key objective of CABs is to engage with pharmaceutical companies in order to bring the patient perspective to clinical trials and other areas. Members of the CAB receive extensive education and training in all aspects of clinical trials/treatment development so that they become patient experts. The Cystinosis CAB has expanded its remit to…

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American Society of Nephrology – Kidney Week

November 5 - November 10
Walter E. Washington Convention Center, Washington, DC, USA, 801 Mt Vernon Pl NW
Washington, 20001 United States
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CRN will join the American Society for Nephrology (ASN) and more than 13,000 other kidney professionals from across the globe at Kidney Week 2019 in Washington, DC. The world’s premier nephrology meeting, Kidney Week provides participants exciting and challenging opportunities to exchange knowledge, learn the latest scientific and medical advances, and listen to engaging and provocative discussions with leading experts in the field.

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March 2020

National Kidney Foundation (NKF) Spring Clinical Meeting

March 25, 2020 - March 29, 2020
Earnest N. Morial Convention Center, 900 Convention Center Blvd
New Orleans, LA 70130 United States
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National Kidney Foundation (NKF) Spring Clinical Meeting is organized by National Kidney Foundation (NKF) and would be held during Mar 25 - 29, 2020 at Earnest N. Morial Convention Center, New Orleans, Louisiana, United States of America.

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July 2020

Cystinosis Network Europe 2020 International Conference

July 9, 2020 - July 12, 2020

Cystinosis Ireland will host the CNE 2020 International Cystinosis Conference, which will be held in Dublin July 9-12, 2020. You can access the official conference page here. Otherwise, email Denise at for more details. About CNE Cystinosis Network Europe (CNE) which comprises members from patient organizations across Europe and further afield. Eight European organisations come together to support people with cystinosis and promote research and form a network. We have a number of projects ongoing to support people living with…

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