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April 2019

Pediatric Academic Societies (PAS) Annual Meeting

April 27 - April 30

The PAS Meeting brings together thousands of pediatricians and other health care providers united by a common mission: improve the health and well-being of children worldwide. Every one of the top 10 children’s hospitals support the Pediatric Academic Societies (PAS) Meeting as the CRN has for years. We look forward to working with the providers and attendees once again in 2019. The Patient Congress is focused on incorporating the patient voice across the entire product lifecycle. This international gathering includes…

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May 2019

2nd Annual 57 Miles for Cystinosis

May 4 @ 12:00 pm - May 5 @ 12:00 pm
Sussex Central High School, 26026 Patriots Way
Georgetown, DE 19947 United States
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July 2019

2019 CRN Family Conference

July 18 - July 20
Hilton at Penns Landing, 201 South Christopher Columbus Blvd
Philadelphia, PA 19106
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Ring in the future with us at the 2019 Family Conference. The weekend is filled with research updates from clinicians and international cystinosis organizations, opportunities to meet and renew friendships, participate in studies, and interact with expert health care professionals. Browse the draft agenda here. The 2019 Family Conference is July 18 – 20, 2019 at the Hilton Philadelphia at Penn’s Landing. The Hilton Philadelphia at Penn’s Landing is the only hotel on Philadelphia's beautiful waterfront in the historic district.…

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