Ring in the future with us at the 2019 Family Conference. The weekend is filled with research updates from clinicians and international cystinosis organizations, opportunities to meet and renew friendships, participate in studies, and interact with expert health care professionals. Browse the draft agenda here.
The 2019 Family Conference is July 18 – 20, 2019 at the Hilton Philadelphia at Penn’s Landing. The Hilton Philadelphia at Penn’s Landing is the only hotel on Philadelphia’s beautiful waterfront in the historic district. They offer an indoor pool, lobby bar, 24-hour coffee shop and waterfront dining at Keating’s Rope & Anchor, Bar + Kitchen. Walk to Philadelphia attractions including the Liberty Bell, Independence Hall, Museum of the American Revolution and Blue Cross Riverrink Summerfest. For more information on the hotel please visit their website.
Join us to:
Below you’ll find links to register, negotiated room rates and scholarship (now closed) details.
We look forward to seeing you in Philadelphia in July 2019!
Everyone impacted and/or interested in learning more about cystinosis and interacting with other individuals, families, and health care experts are encouraged to attend.
Please note: scholarship applications were due by May 10th and are now closed. Scholarship winners will be notified by the end of May. Thank you.
A limited number of conference scholarships are available to help families/individuals attend. Conference Scholarships are open to individuals/families affected by cystinosis who are attending the conference, with the exception of Scholarship Committee members and are limited to one per household.
Conference Scholarships to include:
CRN has established a formalized application process that considers the following criteria using a point system:
CRN Scholarship Committee
c/o Jenni Sexstone
1612 Township Rd 129 S
Zanesfield, Ohio 43360
July 18 – July 20, 2019
The Hilton Penns Landing
The in-person bonding experience is unmatched but we understand it may be difficult for some to travel. For a limited number of sessions, the CRN will make live-streaming available. Please check back for details.
Our goal and hope is to support the conference in its entirety through sponsorship funding and donations. Please consider making a monetary donation towards the conference online or by mailing a check made out to the Cystinosis Research Network, 302 Whytegate Court, Lake Forest, IL 60045 USADonate Now