The Cystinosis Research Network partners with a global network of caring families, concerned individuals and healthcare professionals working together in the fight against cystinosis. The CRN is the only cystinosis advocacy group to provide:
Learn more about our community and their inspirational stories.
May 7, 2018 was the first annual Cystinosis Awareness Day.
Through our awareness and fundraising campaigns, the community reached over 25,000 people online and raised an excess of $21,000 for cystinosis research.