A major focus of the Cystinosis Research Network is to secure a promising future for the cystinosis community through the support and funding of research grants that lead to improved treatments and ultimately a cure for cystinosis.
CRN has funded $5.5 million total in research grants and fellowships including:
- A cystinosis fellowship at the National Institutes of Health (NIH)
- Global research and education programs (U.S., Mexico, England, Scotland, Italy, Egypt,Belgium, France, to name a few)
- Research studies focusing on each aspect of cystinosis to form a comprehensive understanding of the disease
- Neurological
- Genetic
- Ophthalmological
- Gastrointestinal
- Muscular
- Nephrology
- Pulmonary
- Skin/dermatological
- Psychological
- Medication improvement and much more
For a deeper dive, visit Research Updates, view the Grants Awarded, and discover ways to participate in studies here.