Adult Leadership
Advisory Board

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The Adult Leadership Advisory Board (ALAB) is a new group comprised of adults living with cystinosis. Ultimately, this program will develop programming and opportunities for adults affected by cystinosis. In order to set the program up for success, the CRN will begin by providing leadership training through a third party consultant.

ALAB will focus on the issues and challenges facing our community. They will work with CRN board members and other organizations to address the issues, and provide mentorship.

Our goal is to create a group that will not only benefit from the experience, but will contribute to both the ALAB program and the entire cystinosis community.

You can reach out to the ALAB team by scrolling over their pictures below to reveal ways to contact them.

'I try not to look at times of struggle or adversity as a negative...adversities in life are opportunities that can create fighters, instill resiliency, and breed an increased level of self-reflection.'

-Cheryl, living with cystinosis

Brian Ensor
Indiana, USA
Karen Gledhill
New York, USA
Jana Healy
Minnesota, USA
Sara Healy
Minnesota, USA
Heidi Hughes
North Carolina, USA
Laura Krummenacker
New York, USA
Eddie Langley Jr.
Georgia, USA
Laura McGinnis
Tennessee, USA
Emily Mello
Connecticut, USA
Megan Morrill
Michigan, USA
Steve Schleuder
Michigan, USA
Cheryl Simoens
Manitoba, Canada