Families in Your Area

Print Friendly, PDF & Email

Living with a rare disease, like cystinosis, can sometimes create feelings of isolation and loneliness. You do not have to walk this journey alone. With community members spread across the world, we can connect you with someone nearby.

If interested, please complete the form below and we will be in touch.

Networking and meeting other families is what kept me going. – Marybeth, caregiver

  • Date Format: MM slash DD slash YYYY
Share: