There are a number of support groups available. Click on the links below to see which one is the best match for you. For one-on-one support, contact our VP of Family Support, Jen Wyman at firstname.lastname@example.org.
U.S. Cystinosis Organizations
"I had the honor of being a volunteer at the 2017 CRN Family Conference. The patients and their families are the most incredible people I have ever met."
-Lisa, Family Conference Volunteer
International Cystinosis Organizations
Cystinosis Australia Facebook
Brazil Cystinosis Facebook Support: Grupo de Suporte à Cistinose Nordeste – Brasil
Grupo Cistinosis España
Cystinosis Foundation Germany
Cystinosis Foundation India
Cystinosis Foundation Ireland
Italian Cystinosis Association
Cystinosis Mexico AC
Cystinosis Group Netherlands
Cystinosis Foundation South Africa
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