Join us as we celebrate the 7th Annual Cystinosis Awareness Day with an electrifying regional meetup, courtesy of the...
read moreSee you in Cincinnati, Ohio! On May 4th, we are gathering for an in-person meet-up at the Cincinnati Marriott...
read moreFounding ALAB member, Brian Ensor shares his first-hand experiences with the AstraZeneca Vaccination Study. Join the Zoom call Saturday,...
read moreOn May 7, 2022 we celebrate the 5th Annual Cystinosis Awareness Day. This is an opportunity to educate the...
read moreIn the third episode of “Cystinosis Sessions,” a live video conference series created by adults living with cystinosis, topics...
read moreThe third live video conference takes place June 6 at 12:00 pm ET. The Adult Leadership Advisory Board (adults...
read moreJoin the LIVE video conference session on May 2nd!
read moreJoin the first video conference session created by the Adult Leadership Advisory Board - Saturday, March 21 at 4pm...
read moreThe person I’m most grateful for is my sister Jennifer. Six and a half years ago my labs were...
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