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Cystinosis Awareness Day

Join us on and leading up to May 7th to promote cystinosis awareness, education and fundraising efforts. Our 7th...

The Adult Leadership Advisory Board (ALAB) created custom designed bandanas for your furry friends. Your donation provides support for...

On May 7, 2022 we celebrate the 5th Annual Cystinosis Awareness Day. This is an opportunity to educate the...

February 28th marks the 12th annual Rare Disease Day (RDD). Observed on the rarest day of the year, the...

Join The Hilltop and Dicks Family for a fundraiser to benefit sweet Elle. Elle was diagnosed with cystinosis and...

The Myrtle Beach National Golf Club and Gail Potts are hosting a golf tournament benefitting the Cystinosis Research Network...

The goal of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on...

On Thursday, July 2nd, the CRN announced a face mask fundraiser to help create awareness, bring in donations and...

The person I’m most grateful for is my sister Jennifer. Six and a half years ago my labs were...