rare disease

Cystinosis Community Takes on Cincinnati, OH

Join us as we celebrate the 7th Annual Cystinosis Awareness Day with an electrifying regional meetup, courtesy of the...

The New York Academy of Medicine is the location for this “first of its kind” event for healthcare professionals...

The Adult Leadership Advisory Board introduces the topic of Family Planning with Cystinosis to their monthly meetup series....

Amgen has partnered with Believe Limited and the Cystinosis Research Network to bring back the third annual, Speak Up,...

The CRN is hosting an in-person event for healthcare professionals. Join us May 31, 2024 at The New York...

See you in Cincinnati, Ohio! On May 4th, we are gathering for an in-person meet-up at the Cincinnati Marriott...

CRN’s Adult Leadership Advisory Board will host a Q&A with Levi Peterson and Samantha Saver of Patients Rising. Tap...

Healogix Market Research would like to hear from the cystinosis community. If you use *or have used* Cystadrops and...

By Jonathan Dicks, CRN President and VP Development I recently had the privilege of attending the three-night Raregivers Men’s...

Join us on the Raising Rare podcast featuring a young adult and caregiver living with cystinosis. The podcast episode...