support

Pet Fundraiser Benefitting Adults with Cystinosis

The Adult Leadership Advisory Board (ALAB) created custom designed bandanas for your furry friends. Your donation provides support for...

The Cystinosis Research Network announces the expansion of our Board with two new Directors. Their experience, perspectives and dedication...

A global initiative has been announced: the Cystinosis Warrior Impact Program. Our goal is to support, help or find...

Interim CRN President, Tim Wyman, has written an open letter to the cystinosis community. You can read it here.

Angel Aid is currently providing free trauma-less needle poke wellness kits for the cystinosis community. Their “Buzzy” kits were...

Recordati Rare Diseases Inc., the makers of CYSTADROPS, launched a website to support the launch of the eye treatment...

Join hosts from the Adult Leadership Advisory Board (ALAB) for the Cystinosis Sessions video conference series – LIVE- on...

In April, the Cystinosis Network Europe adapted their international conference to the restrictions set forth by COVID-19. The result...

Learn more about the fundamentals of cystinosis during our Cystinosis Basics video meetup. Dr. Larry Greenbaum, Emory School of...

Advocating for rare disease sometimes feels like fighting an uphill battle. Living with cystinosis means you are 1 in...